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![]() InternAUT is an online self-advocacy organization for autism that brings autistic people around the world together via cyberspace. Or visit the alt.support.autism discussion group, which allows autistics to share stories with one another through the user-friendly medium of the asynchronous bulletin board.
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DESPITE SONTAG'S WARNINGS,
the habit of associating deviations from the
norm with new social realities proves hard to break. The Internet
qualifies as a new social circumstance, maybe even a foretaste of a new
way of life, and the search is on for the metaphor that will stick. So it
shouldn't surprise that so many commentators have reached for various
mental disorders as shorthand figures for net culture: the flickering
distractability of attention deficit disorder, for instance, or the
multiple personalities hatched by our chat rooms and our layered windows.
But there is another, deeper analogy waiting to be explored: the social
displacement associated with autism.
Autism is marked by severely impaired social interaction, including
difficulties with the spoken (as opposed to written) word, and is
estimated to occur in approximately one out of a thousand individuals. In
recent years, the Internet has served as more than a metaphor for
autistics; many have found the new medium strangely hospitable and
empowering. As one woman put it in a post to Independent Living (InLv), a
listerv for autistics: "The level of communication possible via the
Internet is changing our lives, ending our isolation, and giving us the
strength to insist on the validity of our own experiences and
observations." For many autistics, the Internet is not only a preferred
medium but an emblem. "Wired," says another member of InLv, "is a word I
often use to describe myself. My mother always said I was plugged into
the electric socket."
UNTIL QUITE RECENTLY, autistics were not thought of as adults capable of
speaking for themselves, but as children who had to be spoken for by
caretakers and therapists. Of these authorities, the best known was
undoubtedly Bruno Bettelheim. Autism was first diagnosed in 1943,
simultaneously in Europe and the United States, and its causes remained
unclear -- even more unclear than they are today -- when Bettelheim began
his work. In the face of evidence that autism had biological roots and
was associated with abnormal brain development, Bettelheim insisted on
what he called the modern "pysychogenic" approach -- i.e. psychoanalysis.
Today, Bettelheim's efforts to explain autism psychoanalytically seem as
arcane as the reading of bird entrails. When mulling over the meaning
electric light held for one autistic boy fascinated with electricity,
Bettelheim concluded that light must have afflicted the child with
thoughts of going blind, since it illuminated issues of sexuality better
"kept hidden in darkness." This sort of deduction plays by the rules of
high psychobabble, but only further mystifies the fact that many autistic
experience a strange attraction to, and identification with, electricity.
In keeping with psychoanalytic doctrine, Bettelheim believed an ounce of
childhood was worth a ton of adulthood. You are who you are because of
what happened during the Big Bang of growing up, when your personal laws
of physics were molded, and you survived events Freud called
"unrememberable and unforgettable." Autism, then, was thought to derive
from an upbringing that pointed back toward the villain of the theory:
the resentful and withholding "refrigerator mom." As Bettelheim put it:
"In general, our autistic children seem potentially very bright and very
sensitive; this is why they react so strongly to emotions in their
parents which they somehow comprehend as a threat to their existence."
The attempt to force autism into the psychoanalytic mold has kindled a
rage among autistics, one that burns brightly in much online discussion.
As one member of InLv put it in the review of Peter Breggin's "Toxic
Psychiatry" she posted to Amazon.com: "In arguing that all psychiatric
conditions are entirely psychogenic, the result of emotional trauma,
he [Breggin] is led to the logical conclusion that autism must be
also. Never mind the vast amounts of research which have conclusively
and repeatedly disproved this vicious little myth... Never mind that in
the 1950s such beliefs led to many autistic children being removed from
their families and subjected to years of totally ineffective and
ludicrous psychoanalytic interpretation instead of an education,
while their parents went through years of guilt and grief... This
is not only intellectually shoddy, it is irresponsible and cruel."
Writers like Temple Grandin and Donna Williams have paved the way for
adult autistics to claim a voice of their own. But a group like InLv
takes the process a step further, by confronting and finding a way around
one of autism's defining characteristics, the inability to negotiate
conventional social interaction. The Internet is the crucial prosthetic
device for such groups. Email allows autistics to circumvent the
difficulties nearly all of them experience in face-to-face encounters.
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![]() "It is telling that although [Bettelheim's two biographers] begin with quite disparate aims, their conclusions are much the same: that Bettelheim was an inveterate liar, a fraud, and an arrogant brute." Read Helene Goldberg's review in Tikkun of two recent biographies on Bruno Bettelheim, one by former Nation editor Richard Pollak entitled, The Creation of Dr. B: A Biography of Bruno Bettelheim.
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![]() In his online book, Face Blind!, Bill Choisser describes the neurological disorder that makes it impossible for an individual to recognize or remember a face. Choisser gives the reader insights into how to get around this essential indexing function that NTs take for granted: "The most critical thing to a face blind child is this: A very few traits, most likely the ones that give the clearest readings, may be selected for the most important job of all - to replace the face as the key to the 'filing system.' For the rest of one's life, these 'key traits' about every person you know will become the way you think of them every time you remember them."
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There is no lack of theories attempting to explain why the human face is
a foreign language to so many autistics. One promising hypothesis
suggests that autistics suffer from a delay in information processing.
Autistic infants take longer than their neurologically typical
counterparts to parse their parents' faces. By the time they have moved
on from their mother's eyes, say, to her mouth, her smile will have
faded, leaving them with a jumbled memory of face parts. The synthetic
work of stitching those features into a coherent, recognizable face --
the sort of synthesis that most of us do intuitively -- is an arduous,
sometimes impossible task. Autistics can compensate for this deficit by a
lifetime of hard work, which is the exactly the kind of thing Temple
Grandin meant when she told Oliver Sacks (who employed the phrase as
title of his book) that she felt as alien to the basics of social
interaction as "an anthropologist on Mars." Yet even Temple Grandin, who
has studied NT -- autistic parlance for "neurologically typical" --
behavior for decades, prefers to avoid eye contact. "All this eye
business," she said to me in an interview. "Eyes move around a lot. I'd
rather concentrate on what your voice sounds like."
The theory of processing delay may provide a clue to the condition known as face-blindness, or prosopagnosia, the inability to recognize faces. It certainly helps understand why many autistics experience reality as a series of freeze-frames, and why an asynchronous form of communication like email would work better than real-time encounters, including phone. But the theory of delay doesn't account for the strange sensorium so many autistics attest to, in which human touch, for example, is painful, and there is often acute, sometimes debilitating sensitivity to sound and texture. For some autistics, synesthesia, the fusing of the senses -- seeing sound, for example, or hearing color -- is not the longed for state it was for Rimbaud in his hashish rambles. Instead, it's a trap, an impediment to getting around in the world. All theories of autism to date are at best partial, a point underscored by Oliver Sacks when he wrote: "The ultimate understanding of autism may demand both technical advances and conceptual ones beyond anything we can now even dream of." To this rule might be added the following corollaries: any good theory of autism will have profound implications for a theory of mind, and any theory of mind must be tested against autism. Any full theory of autism should be able to explain why so many autistics are more comfortable with wiring than with eye contact, why so many take to the Internet, and to computer culture in general, as if it were native soil. The affinity goes well beyond the advantages of email. One member of InLv writes: "I seem to 'scan' faces, in a similar way to how those graphics on the web come -- coarse, then gradually more detailed, as the rest of the image is loaded." Another says: "My brain is digital. Now and then I run scandisk to check on errors in my files." Still another: "The twist and turns that my brain takes are identical to the twists and turns of the Internet." AUTISTICS ARE SO AT HOME in the language of cybernetics it makes you wonder what happens to NTs when they, too, begin to introspect, to talk to themselves, in cyber-ese. Do they become a little more autistic in the process? Is there such a thing as contact autism? Or is the Internet a common ground, a rainbow bridge for all manner of neurological configurations? In looking for a state of mind to set alongside digital media, a sort of mental logo for the information age, writers like Sandy Stone and Sherry Turkle have decided on Multiple Personality Disorder (MPD) as the emblematic complaint. Their argument boils down to this: many windows, many selves; multiple log-on names, multiple personae. But one problem with associating new media with MPD is that the diagnosis itself is in the process of being reevaluated. As recently as a decade ago, we seemed on the verge of becoming a nation of Sibyls, dissolving en mass into personae -- or "alters" -- as adults because of severe abuse undergone as children. Today, many fewer cases of MPD are authenticated, in lieu of which MPD is making its presence felt in analyses of computer culture. Besides, if the age of the Internet does need a mental state to call its very own, MPD's claims are trivial compared to those of autism. MPD is a throwback to Freud, to the belief that trauma, real or imagined, actual or Oedipal, is the one and only parent of the man. Autism, on the other hand, cuts through to the core metaphor of our day -- joining neurology to cybernetics and human being to machine. Multitasking may not be a genuinely new experience, but surely the faceless, asynchronous interactions of e-mail and the web are something categorically different from what has come before, something closer to the lived reality of autism. We are all drawn to the the wiring now, whether we like it or not. In all of Bruno Bettelheim's work with autistic children, the most striking to emerge is Joey, who came to Bettelheim in the 1950s when he was nine and a half years old and remained for almost a decade. When Joey entered a room, he would typically run an imaginary wire from his body to the nearest outlet as if he were plugging himself in, an act that prompted Bettelheim to deep thoughts about the kind of anxieties Joey was prey to. When Joey visited Bettelheim for the last time he had just finished high school and proudly displayed a device he had built to convert alternating to direct current. Bettelheim ruminated up a storm about the meaning of Joey going from AC to DC -- he thought, overall, it was a good thing -- but the main point, eluding him once again, was this: like so many autistics since, Joey had stayed true to the wiring. |
![]() Harvey Blume's interview with Oliver Sacks can be found at BookWire. "We are in strange waters here, where all the usual considerations may be reversed -- where illness may be wellness, and normality illness, where excitement may be either bondage or release... It is the very realm of Cupid and Dionysus." Blume's interview with Temple Grandin can be found on Bookwire as well.
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